I shared this with my friends last night after reading this article.
In December I was told I have POTS/Dysautonomia like the young girl in this article that just so “happened” to show up on my Facebook page today. So I decided it was a sign that it was time to share my story with my friends. I’ve struggled for years with so many different symptoms, telling doctors over and over again that something wasn’t right. So unbelievably frustrating how many times I was dismissed or treated poorly by doctors. It wasn’t until an medicine-induced illness in September that symptoms presented enough to catch it. A tilt table test revealed a heart rate increase of 41 beats a minute upon standing and another test (metabolic functioning test) revealed I’m only reaching 53% of my energy (metabolism) level. My sleep study revealed multiple heart rate spikes during the night. My blood pressure was low, I was experiencing dizziness and heat intolerance. I was experiencing anxiety and panic from all the body changes. I felt like I was losing my mind and there were plenty of doctors who were quick to judge and dismiss me. I really resented the illness that landed me in the hospital for three weeks in September at first because it turned my world upside down. But through it, I found God, discovered what was really going on medically and finally felt vindicated. And I believe God is mapping out a bigger purpose for me, one where my experiences can help others. I’ve been encouraged to share this by many but honestly was scared to out of fear of rejection or being misunderstood. However, nothing good ever comes out of fear and change never happens if we don’t talk about things openly. So If you are going through something, trust your gut, seek answers, research, ask questions. Don’t ever give up on yourself. God allowed me to fall just far enough, to put me in the precise circumstance I needed and then put the right people in place at the right time to catch me. He brought me to my knees but then showed me the way forward. I’m now with a good doctor and receiving nutritional support and biofeedback.
Liked by Laurie
Hello! I’ve had those tests also. As a nurse, it struck me that no one has mentioned a metabolic functioning test! Thank you! I’ll be looking into that. I’ve always wanted them to kind of tell me I have hypothyroidism, so there’d be something I could take to help my metabolism. Sounds strange coming from a nurse, but I’m so tired, that I just want my metabolism to take off! I’m sure I’m not the only one that feels that way. Thank you!!!
I enjoyed your article! I’m a nurse, and I didn’t get POTS until after I had C-diff at 46. I have the same symptoms, and was fainting a lot too. It’s still hard for me to stand very long. I’m going to be tested for MCAS too. It’s called Mast Cell Activation Syndrome, and a lot of POTS pts. also have it. There’s a blood test they can do to check your Tryptase level. (A protein that comes from protein) I get a lot of hives, itching and allergic reactions too. Maybe this test will show something for me. I pray they find a cure for P.O.T.S.
Blessings! Laurie
@mefixitwell
My Granddaughter has POTS but it took a lot of miss diagnosing and saying she needed psych treatment before being properly diagnosed. We think it started when she was 10. Now with diet, chiropractors and a holistic medical center, she is able to function almost normal most of the time. She is only 20 now. I hope she will still see some progress in the future.
Liked by Laurie