Most of the time, "Jedi Jack" Tesch is one of the good guys. The Force is strong in the 9-year-old "Star Wars" fan. But for a few weeks this spring, he put on a Darth Maul mask and channeled the dark side. The mask, created for Jack by his care team at Mayo Clinic, was designed to help him fight a recurrent brain tumor. "I chose an evil character to kill the brain cancer," he tells us. (Smart you are, young Padawan.)
When Jack began proton beam radiation treatment, his mask — a firm, plastic mesh device designed to keep him still during the targeted therapy — looked the same as every other patient's. But midway through his treatments, staff at the Proton Beam Therapy Program offered to paint it. "We saw on social media that other centers were painting masks for kids," says Jennifer Deweese, a radiation therapist at Mayo Clinic. So she and her colleagues decided to unleash their inner Picassos, too. In addition to Darth Maul, they've created Pokémon characters, a unicorn, a mermaid, a Minion and various superheroes. "Every kid wants something different," Deweese says. And the care team is happy to oblige.
The masks may look different on the outside, but they've had a similar impact on the insides of young patients like Jack. "Decorating the mask to the patient's preferences changes the mask from 'that thing they make me wear' to 'my mask,'" Randy Mc Keeman, a Mayo child life specialist, tells us. "That is a huge difference in the way the child sees the whole procedure." It's a difference Deweese has seen firsthand. "Now kids are kind of excited to put their masks on," she tells us. "Wearing the mask seems less intimidating if the child gets to pick out what they want it to look like." And she says kids aren't the only ones who benefit from the artsy addition to treatment. "It's fun for parents, and rewarding for the people who paint the masks."
While there's no prescription for a painted mask — at least not yet — there's no doubt the gesture is good medicine for the young patients. "The mask painting helps to transform a fearful thing into a fun thing," Mc Keeman tells us. "Pediatric patient needs are different than adult patient needs. As part of the Child Life team, our work is to hold up those different needs and make sure we are meeting those needs."
Mission accomplished, according to Heather Jelsma, whose 8-year-old son, Devin, recently completed proton therapy. The Chicago Cubs fan often wore Cubs T-shirts to his appointments, a fashion choice that didn't go unnoticed by staff who turned his mask into a Cubs player. "Everyone at Mayo was so friendly and so caring," Heather says. "They get to know you as a person. They found a way to personalize Devin's mask. It wasn't just some cool character. They painted something that meant something to Devin."
So much so that he took the mask home when he finished treatment — and plans to wear it trick-or-treating on Halloween. (That sounds pretty sweet to us.)
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