In the Loop

News and views from across Mayo Clinic

Items Tagged ‘hypoplastic left heart syndrome’

7-Year-Old Fan of Mayo's Patient Portal Meets Team Behind the Technology

January 30, 2020

7-Year-Old Fan of Mayo’s Patient Portal Meets Team Behind the Technology

By In the Loop In the Loop

When Ava Weitl had trouble signing in to the patient portal, she took her problem to the source: the team responsible for the app. It was a meeting made possible by Ava’s friends (and fans) at Mayo Clinic.

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Tags: Connected Care, Dr. Timothy Nelson, hypoplastic left heart syndrome, Julie Prigge, Mayo Clinic in Rochester, Patient Online Services, Todd and Karen Wanek Family Program for HLHS


'Feel the Beat' Is About Hope, Healing and Camaraderie, and It's Easy to Dance To

October 22, 2019

‘Feel the Beat’ Is About Hope, Healing and Camaraderie, and It’s Easy to Dance To

By In the Loop In the Loop

Naomi Babcock took center stage at an event created to thank patients and their families for their contributions to HLHS research, showing others what someone living with the rare condition is capable of achieving.

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Tags: Brianna Tranby, HLHS, HLHS Consortium, hypoplastic left heart syndrome, Todd and Karen Wanek Family Program for HLHS


"Heart Families" Organize Toy Drive for Hospitalized Kids

November 15, 2018

“Heart Families” Organize Toy Drive for Hospitalized Kids

By In the Loop In the Loop

Linsey Rippy tends to go overboard when it comes to toys around the holiday season, which is a good thing for children in the hospital at Mayo Clinic, where donations from Rippy’s annual toy drive end up.

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Tags: Congenital Heart Defect, heart transplant, hypoplastic left heart syndrome, Mayo Clinic Children's Center, Mayo Clinic in Rochester, Ronald McDonald House


June 21, 2016

Mayo Researchers Use Stem Cells to Try and Heal Baby Lucas’ Heart

By In the Loop In the Loop

Last July, Jennifer Gutman told Toledo, Ohio’s 13 ABC Action News that the day doctors diagnosed her unborn son, Lucas, with hypoplastic left heart syndrome, also known as HLHS, was “the worst day of her life.” The diagnosis came during what Jennifer and her husband, Brian, thought would be a routine 22-week ultrasound. The startling […]

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Tags: Dr. Timothy Nelson, hypoplastic left heart syndrome


December 4, 2014

An On-the-Field Heart to Heart

By In the Loop In the Loop

To the casual onlooker, it probably looked like just another young fan getting a chance to meet a professional football player on the sidelines of TCF Bank Stadium in Minneapolis this past Sunday before the Carolina Panthers took on the Minnesota Vikings. But what young Ryder Smith and Panther’s tight end Greg Olsen shared in […]

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Tags: hypoplastic left heart syndrome


January 28, 2014

Not cutting this cord

By Mystery User

We’ll cut to the chase: Although the phrase “cutting the cord” is used to symbolize freedom, it seems that researchers these days are coming back to the cord – in a search for cures for diseases such as diabetes, arthritis, cerebral palsy and more. A recent story in The Wall Street Journal, in fact, suggests […]

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Tags: Dr. Tim Nelson, hypoplastic left heart syndrome, Mayo Clinic Children's Center


September 25, 2012

Princess Ava of Des Moines

By In the Loop In the Loop

  Ava with Nurse Mary, who nicknamed her “Princess Ava of Des Moines.” Earlier this month, Brad Weitl and Christina DeShaw of Clive, Iowa, brought their twins, Ava and Aidan, home for the first time. It’s a traditional rite of parenthood. But for this family, it was a long time coming. As a story by […]

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Tags: Dr. Ben Eidem, Dr. Harold Burkhart, HLHS, hypoplastic left heart syndrome


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